The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Rachael A. Gordon; Yann Nguyen; Nathan Foulquier; Maxime Beydon; Tamer A Gheita; Raouf Hajji; Ilfita Sahbudin; Alberta Hoi; Wan-Fai Ng; Jose Alexandre Mendonça; Daniel J Wallace; Beverley Shea; George AW Bruyn; Susan M. Goodman; Benjamin A Fisher; Chiara Baldini; Karina D Torralba; Hendrika Bootsma; Esen K Akpek; Sezen Karakus; Alan N Baer; Soumya D Chakravarty; Lene Terslev; Maria-Antonietta D'agostino; Xavier Mariette; Dana Direnzo; Astrid Rasmussen; Athena Papas; Cristina Montoya; Suzanne Arends; Md Yuzaiful Md Yusof; Ionut Pintilie; Blake M. Warner; Katherine m. Hammitt; Vibeke Strand; Coralie Bouillot; Peter Tugwell; Nevsun Inanc; José Luis Andreu; Marie Wahren-Herlenius; Valerie Devauchelle-Pensec; Caroline H. Shiboski; Anas Benyoussef; Sharmila Masli; Adrian Y.S. Lee; Divi Cornec; Simon Bowman; Maureen Rischmueller; Sara S Mccoy; Raphaele Seror

doi:10.1016/j.semarthrit.2024.152378

The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Rachael A. Gordon, Yann Nguyen, Nathan Foulquier, Maxime Beydon, Tamer A Gheita, Raouf Hajji, Ilfita Sahbudin, Alberta Hoi, Wan-Fai Ng, Jose Alexandre Mendonça, Daniel J Wallace, Beverley Shea, George AW Bruyn, Susan M. Goodman, Benjamin A Fisher, Chiara Baldini, Karina D Torralba, Hendrika Bootsma, Esen K Akpek, Sezen KarakusAlan N Baer, Soumya D Chakravarty, Lene Terslev, Maria-Antonietta D'agostino, Xavier Mariette, Dana Direnzo, Astrid Rasmussen, Athena Papas, Cristina Montoya, Suzanne Arends, Md Yuzaiful Md Yusof, Ionut Pintilie, Blake M. Warner, Katherine m. Hammitt, Vibeke Strand, Coralie Bouillot, Peter Tugwell, Nevsun Inanc, José Luis Andreu, Marie Wahren-Herlenius, Valerie Devauchelle-Pensec, Caroline H. Shiboski, Anas Benyoussef, Sharmila Masli, Adrian Y.S. Lee, Divi Cornec, Simon Bowman, Maureen Rischmueller, Sara S Mccoy^*, Raphaele Seror

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

Abstract

Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.

Original language	English
Article number	152378
Number of pages	6
Journal	Seminars in arthritis and rheumatism
Volume	65
Early online date	23 Jan 2024
DOIs	https://doi.org/10.1016/j.semarthrit.2024.152378
Publication status	Published - Apr 2024

Bibliographical note

Keywords

OMERACT
BIBOT
Artificial intelligence
Scoping literature review
Review
Sjogren’s disease

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10.1016/j.semarthrit.2024.152378Licence: None: All rights reserved

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Gordon, R. A., Nguyen, Y., Foulquier, N., Beydon, M., Gheita, T. A., Hajji, R., Sahbudin, I., Hoi, A., Ng, W.-F., Mendonça, J. A., Wallace, D. J., Shea, B., Bruyn, G. AW., Goodman, S. M., Fisher, B. A., Baldini, C., Torralba, K. D., Bootsma, H., Akpek, E. K., ... Seror, R. (2024). The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation. Seminars in arthritis and rheumatism, 65, Article 152378. https://doi.org/10.1016/j.semarthrit.2024.152378

@article{d5440c272e374ed29b378a121690bed2,

title = "The Sj{\"o}gren's Working Group: The 2023 OMERACT meeting and provisional domain generation",

abstract = "Sj{\"o}gren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.",

keywords = "OMERACT, BIBOT, Artificial intelligence, Scoping literature review, Review, Sjogren{\textquoteright}s disease",

author = "Gordon, {Rachael A.} and Yann Nguyen and Nathan Foulquier and Maxime Beydon and Gheita, {Tamer A} and Raouf Hajji and Ilfita Sahbudin and Alberta Hoi and Wan-Fai Ng and Mendon{\c c}a, {Jose Alexandre} and Wallace, {Daniel J} and Beverley Shea and Bruyn, {George AW} and Goodman, {Susan M.} and Fisher, {Benjamin A} and Chiara Baldini and Torralba, {Karina D} and Hendrika Bootsma and Akpek, {Esen K} and Sezen Karakus and Baer, {Alan N} and Chakravarty, {Soumya D} and Lene Terslev and Maria-Antonietta D'agostino and Xavier Mariette and Dana Direnzo and Astrid Rasmussen and Athena Papas and Cristina Montoya and Suzanne Arends and {Md Yusof}, {Md Yuzaiful} and Ionut Pintilie and Warner, {Blake M.} and Hammitt, {Katherine m.} and Vibeke Strand and Coralie Bouillot and Peter Tugwell and Nevsun Inanc and Andreu, {Jos{\'e} Luis} and Marie Wahren-Herlenius and Valerie Devauchelle-Pensec and Shiboski, {Caroline H.} and Anas Benyoussef and Sharmila Masli and Lee, {Adrian Y.S.} and Divi Cornec and Simon Bowman and Maureen Rischmueller and Mccoy, {Sara S} and Raphaele Seror",

note = "Copyright {\textcopyright} 2024. Published by Elsevier Inc.",

year = "2024",

month = apr,

doi = "10.1016/j.semarthrit.2024.152378",

language = "English",

volume = "65",

journal = "Seminars in arthritis and rheumatism",

issn = "0049-0172",

publisher = "Elsevier",

}

Gordon, RA, Nguyen, Y, Foulquier, N, Beydon, M, Gheita, TA, Hajji, R, Sahbudin, I, Hoi, A, Ng, W-F, Mendonça, JA, Wallace, DJ, Shea, B, Bruyn, GAW, Goodman, SM, Fisher, BA, Baldini, C, Torralba, KD, Bootsma, H, Akpek, EK, Karakus, S, Baer, AN, Chakravarty, SD, Terslev, L, D'agostino, M-A, Mariette, X, Direnzo, D, Rasmussen, A, Papas, A, Montoya, C, Arends, S, Md Yusof, MY, Pintilie, I, Warner, BM, Hammitt, KM, Strand, V, Bouillot, C, Tugwell, P, Inanc, N, Andreu, JL, Wahren-Herlenius, M, Devauchelle-Pensec, V, Shiboski, CH, Benyoussef, A, Masli, S, Lee, AYS, Cornec, D, Bowman, S, Rischmueller, M, Mccoy, SS & Seror, R 2024, 'The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation', Seminars in arthritis and rheumatism, vol. 65, 152378. https://doi.org/10.1016/j.semarthrit.2024.152378

TY - JOUR

T1 - The Sjögren's Working Group

T2 - The 2023 OMERACT meeting and provisional domain generation

AU - Gordon, Rachael A.

AU - Nguyen, Yann

AU - Foulquier, Nathan

AU - Beydon, Maxime

AU - Gheita, Tamer A

AU - Hajji, Raouf

AU - Sahbudin, Ilfita

AU - Hoi, Alberta

AU - Ng, Wan-Fai

AU - Mendonça, Jose Alexandre

AU - Wallace, Daniel J

AU - Shea, Beverley

AU - Bruyn, George AW

AU - Goodman, Susan M.

AU - Fisher, Benjamin A

AU - Baldini, Chiara

AU - Torralba, Karina D

AU - Bootsma, Hendrika

AU - Akpek, Esen K

AU - Karakus, Sezen

AU - Baer, Alan N

AU - Chakravarty, Soumya D

AU - Terslev, Lene

AU - D'agostino, Maria-Antonietta

AU - Mariette, Xavier

AU - Direnzo, Dana

AU - Rasmussen, Astrid

AU - Papas, Athena

AU - Montoya, Cristina

AU - Arends, Suzanne

AU - Md Yusof, Md Yuzaiful

AU - Pintilie, Ionut

AU - Warner, Blake M.

AU - Hammitt, Katherine m.

AU - Strand, Vibeke

AU - Bouillot, Coralie

AU - Tugwell, Peter

AU - Inanc, Nevsun

AU - Andreu, José Luis

AU - Wahren-Herlenius, Marie

AU - Devauchelle-Pensec, Valerie

AU - Shiboski, Caroline H.

AU - Benyoussef, Anas

AU - Masli, Sharmila

AU - Lee, Adrian Y.S.

AU - Cornec, Divi

AU - Bowman, Simon

AU - Rischmueller, Maureen

AU - Mccoy, Sara S

AU - Seror, Raphaele

PY - 2024/4

Y1 - 2024/4

N2 - Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.

AB - Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.

KW - OMERACT

KW - BIBOT

KW - Artificial intelligence

KW - Scoping literature review

KW - Review

KW - Sjogren’s disease

U2 - 10.1016/j.semarthrit.2024.152378

DO - 10.1016/j.semarthrit.2024.152378

M3 - Article

C2 - 38310657

SN - 0049-0172

VL - 65

JO - Seminars in arthritis and rheumatism

JF - Seminars in arthritis and rheumatism

M1 - 152378

ER -

The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation

Abstract

Bibliographical note

Keywords

Access to Document

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Cite this