Electronic patient reported outcomes for miscarriage research in Tommy's Net

O Khan; S Gour; SN Lim Choi Keung; N Morris; R Shields; S Quenby; DB Dimakou; O Pickering; J Tamblyn; A Devall; A Coomarasamy; DK Thornton; A Perry; TN Arvanitis

doi:10.3233/shti220764

Electronic patient reported outcomes for miscarriage research in Tommy's Net

O Khan, S Gour, SN Lim Choi Keung, N Morris, R Shields, S Quenby, DB Dimakou, O Pickering, J Tamblyn, A Devall, A Coomarasamy, DK Thornton, A Perry, TN Arvanitis

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Abstract

The Tommy’s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy’s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported.

Methods: Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey.

Results: LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use.

Conclusion: We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy’s study.

Original language	English
Pages (from-to)	458-461
Number of pages	4
Journal	Studies in health technology and informatics
Volume	295
DOIs	https://doi.org/10.3233/shti220764
Publication status	Published - 29 Jun 2022

Keywords

Recurrent Miscarriage
ePRO
e-Consent

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Khan, O., Gour, S., Lim Choi Keung, SN., Morris, N., Shields, R., Quenby, S., Dimakou, DB., Pickering, O., Tamblyn, J., Devall, A., Coomarasamy, A., Thornton, DK., Perry, A., & Arvanitis, TN. (2022). Electronic patient reported outcomes for miscarriage research in Tommy's Net. Studies in health technology and informatics, 295, 458-461. https://doi.org/10.3233/shti220764

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title = "Electronic patient reported outcomes for miscarriage research in Tommy's Net",

abstract = "The Tommy{\textquoteright}s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy{\textquoteright}s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported.Methods: Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey.Results: LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use.Conclusion: We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy{\textquoteright}s study.",

keywords = "Recurrent Miscarriage, ePRO, e-Consent",

author = "O Khan and S Gour and {Lim Choi Keung}, SN and N Morris and R Shields and S Quenby and DB Dimakou and O Pickering and J Tamblyn and A Devall and A Coomarasamy and DK Thornton and A Perry and TN Arvanitis",

year = "2022",

month = jun,

day = "29",

doi = "10.3233/shti220764",

language = "English",

volume = "295",

pages = "458--461",

journal = "Studies in health technology and informatics",

issn = "0926-9630",

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TY - JOUR

T1 - Electronic patient reported outcomes for miscarriage research in Tommy's Net

AU - Khan, O

AU - Gour, S

AU - Lim Choi Keung, SN

AU - Morris, N

AU - Shields, R

AU - Quenby, S

AU - Dimakou, DB

AU - Pickering, O

AU - Tamblyn, J

AU - Devall, A

AU - Coomarasamy, A

AU - Thornton, DK

AU - Perry, A

AU - Arvanitis, TN

PY - 2022/6/29

Y1 - 2022/6/29

N2 - The Tommy’s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy’s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported.Methods: Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey.Results: LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use.Conclusion: We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy’s study.

AB - The Tommy’s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy’s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported.Methods: Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey.Results: LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use.Conclusion: We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy’s study.

KW - Recurrent Miscarriage

KW - ePRO

KW - e-Consent

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SN - 0926-9630

VL - 295

SP - 458

EP - 461

JO - Studies in health technology and informatics

JF - Studies in health technology and informatics

ER -

Electronic patient reported outcomes for miscarriage research in Tommy's Net

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Keywords

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