Research output per year
Research output per year
Abstract
Background and Objective
There has been an increase in the study and use of stated-preference methods to inform medicine development decisions. The objective of this study was to identify prioritized topics and questions relating to health preferences based on the perspective of members of the preference research community.
Methods
Preference research stakeholders from industry, academia, consultancy, health technology assessment/regulatory, and patient organizations were recruited using professional networks and preference-targeted e-mail listservs and surveyed about their perspectives on 19 topics and questions for future studies that would increase acceptance of preference methods and their results by decision makers. The online survey consisted of an initial importance prioritization task, a best-worst scaling case 1 instrument, and open-ended questions. Rating counts were used for analysis. The best-worst scaling used a balanced incomplete block design.
Results
One hundred and one participants responded to the survey invitation with 66 completing the best-worst scaling. The most important research topics related to the synthesis of preferences across studies, transferability across populations or related diseases, and method topics including comparison of methods and non-discrete choice experiment methods. Prioritization differences were found between respondents whose primary affiliation was academia versus other stakeholders. Academic researchers prioritized methodological/less studied topics; other stakeholders prioritized applied research topics relating to consistency of practice.
Conclusions
As the field of health preference research grows, there is a need to revisit and communicate previous work on preference selection and study design to ensure that new stakeholders are aware of this work and to update these works where necessary. These findings might encourage discussion and alignment among different stakeholders who might hold different research priorities. Research on the application of previous preference research to new contexts will also help increase the acceptance of health preference information by decision makers.
There has been an increase in the study and use of stated-preference methods to inform medicine development decisions. The objective of this study was to identify prioritized topics and questions relating to health preferences based on the perspective of members of the preference research community.
Methods
Preference research stakeholders from industry, academia, consultancy, health technology assessment/regulatory, and patient organizations were recruited using professional networks and preference-targeted e-mail listservs and surveyed about their perspectives on 19 topics and questions for future studies that would increase acceptance of preference methods and their results by decision makers. The online survey consisted of an initial importance prioritization task, a best-worst scaling case 1 instrument, and open-ended questions. Rating counts were used for analysis. The best-worst scaling used a balanced incomplete block design.
Results
One hundred and one participants responded to the survey invitation with 66 completing the best-worst scaling. The most important research topics related to the synthesis of preferences across studies, transferability across populations or related diseases, and method topics including comparison of methods and non-discrete choice experiment methods. Prioritization differences were found between respondents whose primary affiliation was academia versus other stakeholders. Academic researchers prioritized methodological/less studied topics; other stakeholders prioritized applied research topics relating to consistency of practice.
Conclusions
As the field of health preference research grows, there is a need to revisit and communicate previous work on preference selection and study design to ensure that new stakeholders are aware of this work and to update these works where necessary. These findings might encourage discussion and alignment among different stakeholders who might hold different research priorities. Research on the application of previous preference research to new contexts will also help increase the acceptance of health preference information by decision makers.
| Original language | English |
|---|---|
| Number of pages | 12 |
| Journal | The Patient - Patient-Centred Outcomes Research |
| Early online date | 16 Dec 2023 |
| DOIs | |
| Publication status | E-pub ahead of print - 16 Dec 2023 |
Bibliographical note
AcknowledgmentsThe authors are grateful to members of the PREFER Consortium, scientific advisors, and health preference research community, including the International Academy of Health Preference Research and ISPOR Health Preference Research Special Interest Group, for their important contribution in completing this study that allowed the ranking of research priorities. A special acknowledgment to Sander Boxebeld, Dr. Norah Crossnohere, Dr. Ilene Hollin, Dr. Bennett Levitan, Dr. Karin Schölin Bywall, Nicholas Smeele, Dr. Vikas Soekhai, Dr. Chiara Whichello, and Dr. Janine van Til for their assistance in refining the survey.
Fingerprint
Dive into the research topics of 'Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What questions should be prioritized now?'. Together they form a unique fingerprint.Research output
- 1 Other contribution
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PREFER Recommendations - Why, when and how to assess and use patient preferences in medical product decision-making
PREFER consortium, 19 Apr 2022, 287 p. Zenodo.Research output: Other contribution
Open Access
Projects
- 1 Finished